PANAMA CITY BEACH, Fla. (WJHG/WECP) - Katie Clunan noticed a complication as soon as her son Tripp was born.
"Within a few hours of birth, when he started to fall asleep, he stopped breathing," said Clunan.
Tripp's condition was a mystery at first. Medical professionals then identified the condition as Congenital Central Hypoventilation Syndrome, or CCHS.
"It's a disorder of the autonomic nervous system, and so the brain doesn't always send the appropriate signals to the body. For instance, when he's sleeping, the brain does not send a signal to his body to breathe," explained Clunan.
Tripp was put on a ventilator and had a tracheotomy and feeding tube at first. He's made a lot of progress and now only requires a ventilator at night.
Tripp is 11 years-old. He attends school, but has a nurse who attends with him to keep a watch over him throughout the day should an emergency arise.
Clunan describes Tripp as a miracle and wants other families to be aware of this disorder. To learn more about CCHS, you can watch the video above and click on the link attached to this article.